Wednesday, June 4, 2014

Autism Wednesday: Confessions of Life with Baby Bear

So....I haven't written in a long time. Oh, I've had intentions of writing. I even came up with a blog post or two...that never made it from my computer to here. Life has been filled with the usual ups and downs that find us all. Baby Bear has done so great at times and I've wanted to share those moments --and then there are days that really just make me want to throw my hands up in surrender and say, Come take him. I can't handle it anymore. Those are the times that really break my heart. I know there are parents who have had to make the painful decision to place their child in a residential home of some sort. The one time we came really close to actually doing it --we were informed that the state wouldn't take him. They have no place for young adults with moderate to severe autism. We never pursued it so I have no idea how true that statement is. I do know, however, that in the hierarchy of state funds, adults with special needs are very low on the totem pole. But you know what? Honestly and truly I don't want to place my son in a home that isn't mine. I know there are loving people who become caregivers, and I also know that one day he may very well end up in one anyway, due to the deaths of The Hubs and me, or that we are just too old and frail to care for him properly. At the same time, I can't imagine not having J in the house each night.

The times that I do consider placement are born out of frustration, anger, and fear. This is a home we plan to stay in for a very long time if we can. We are the ones responsible for repairs. It makes me feel better that I don't have the worry of a landlord throwing us out because J broke something, but it also makes my heart sink when I see the damage that has occurred in J's room already. Sometime very soon, as in the next few weeks or so, we will be learning all about replacing dry wall. At the same time, we are considering what to put on the walls that is sturdy enough to withstand the banging, but wont seriously hurt his hands. Quite obviously plain, painted walls aren't going to cut it in his room. If a crack or hole is knocked in it, his OCD  kicks in and he starts picking at it, particularly if he's angry or bored. See where this is going? Yeah, not pretty. There are books, magazine articles and blog posts galore on baby proofing your home.  Baby Bear proofing? Not so much. I feel like I'm paving the way on this one. 

So...yeah. That's pretty much life here at Dottie's Life these days. Mostly good, some not so good, and learning to tread water again. I won't promise to write posts because we've seen how that goes here. But please don't give up on me. I have lots to tell you about. I just stumbled once again and let life pull at me. I want to write at least three posts a week, if not more. If I lag, please feel free to contact me. I love hearing from you even if I don't get a chance to respond.  For now, housework calleth, as does Baby Bear. He's "talking" to me in his own language, wanting attention. I do love his sense of humor.

 Baby Bear doesn't like getting his hair cut very often due to sensitivity issues. But I do love his mischievous smile. Doesn't he clean up good?

1 comment:

  1. My son and daughter in law put up tile board. My granddaughter messed with the drywall as well. It doesn't quite go to the ceiling. Also, they put in tempered glass windows because she broke one with her head.